Monday, October 23, 2017

October – Pregnancy & Infant Loss Awareness Month and other rants

Purely coincidental, waiting for transfer day and October have synced together. With the next step in our IVF process a few weeks out, I wanted to write more on my infertility journey. And in my case that includes miscarriages. October has been designated as the Pregnancy & Infant Loss Awareness month. One in four women will experience such a loss. I won’t call myself an advocate. I can’t fit into that world. I’ll also leave the gentle posts to others that are better equipped to handle it. For many, a dark abyss forms, both in heart and mind, and you must contemplate the decision to let it consume you. And even if you fight it, that darkness still gets its piece and leaves an emptiness. All the while, as you face this struggle, majority of the world will be apathetical. I am not delusional enough to think that people who don’t know me would have any feelings about me. However, I, like plenty of loss moms, do know the sting of being dismissed by the people around you. I could be polite and say it’s because they don’t understand. Well, I call bullshit on that. We have all listened to the troubles and tragedies of others that we can’t relate to. Often we just want validation that our pain is real and is okay to feel. I fathom that the awkwardness of the conversation makes people hesitate, but I don’t find this the biggest issue. After initial sympathies are offered(if any at all), very rarely is there any follow-up. Why does this irritate me? Because I am inundated with constant melodramatic wailing about the importance of mental well-being and how people should support everyone. This is puffery in the sense that we have that kind of capacity. It is also dubious since I rarely see any action that accompanies all the Facebook and Twitter posts that boast about love.

One moment a women is being offered the promise of happiness. In the next, she essentially experiences a mini labor, her insides twisting and contracting,. That longingness she wished for has been expelled. She is left hollowed out. I do mean this both literally and figuratively. And too often she sits reeling from the catastrophe and the hormonal upheaval alone. Why is it now no one can submit a shoulder to cry on or bring food? Whether, these babies only lived in the womb or had the briefest of moments in their parents’ arms, they were our children and they were loved.

I know I’m rambling a bit. However, how you been in a room full of family members and not one comes up to you and express any kind of sympathy? I have. And it would kind of sucks, but I long ago came to accept that I’m not someone who people bother about. My mental and emotional state is dependent mostly on myself. This is just me, however, plenty of women need to connect with family and friends.

Each women experiences their loss differently. Each will tell (or not) their stories in their own way. Each will, hopefully, find a path to healing in their own time. But many would like to be remembered after life has seemingly returned to normal. Some need more support. Others would just like someone to ask: “How are you doing?” The acknowledgment that their child existed can do wonders. There’s a burden of feeling like you are the only one who remembers your baby. The arbitrary way your grief is treated isolates you.

Sentiments have a place. Pretty words might work for some. Actions. Making an effort. This is what I see as meaningful.

If we want to work on being more compassionate, then we should start by being aware of the people closest to us. I believe a more local focus helps us build a bigger picture. Otherwise, it’s just posturing.

Nope, not an advocate. I’m probably the jerk you think I am. Have a string of displeased people in my wake that agree. I’m just tired of people’s idea of “helping” is to do a fun run. Or whatever viral fad is making the rounds. We want the appearance of being a good person because we neglect to actually BE one. Not saying we’re inherently evil, but not as humanitarian as the facade we don.


Sorry, if this post became disjointed. When I witness the opposite of what I’m being forced-fed, well, my eyes are still rolling. And even though I don’t fit in with the specialty groups I’m a member of, I still want to see a better support bridge in place.

Monday, October 2, 2017

The PGS results

Technically, I received the call on Friday. We went on a quick trip and I didn’t feel like posting. Being in a hotel room feels like escaping reality. Your existence centers around that little room and it’s easy not to care about what is happening elsewhere. Sooooooo….we’re back home now.

Out of the eight embryos tested; five were cleared as “normal.” And—spoil alert—they are all girls. We now have five tiny female embabies waiting for us. Still, nothing is guaranteed. The chances of success do rise, but no certainties. We will be transferring just one embryo at a time. There are several reasons for this. First, I have previous have suffered from an incompetent cervix. So the smaller the gamble on multiples, the better. Second, due to the blood clots I had, again one baby is better. I will be on blood thinners my entire pregnancy. Third, it seems to be recommended for a normal, healthy embryo. This will give us five potential attempts.

It looks like the end of this month or the beginning of November we should be able to transfer. What of the other three? Two were male, one undetermined sex. One had trisomy (three copies of a chromosome) and two had monosomy (one copy of a chromosome).

I find it all surreal. Basically, we started with 20 maybe babies. Now we are down to five. I am very grateful to have them. It’s just astounding to see how fast they can dwindle away.

Can I go hide in a hotel again?