Monday, October 23, 2017

October – Pregnancy & Infant Loss Awareness Month and other rants

Purely coincidental, waiting for transfer day and October have synced together. With the next step in our IVF process a few weeks out, I wanted to write more on my infertility journey. And in my case that includes miscarriages. October has been designated as the Pregnancy & Infant Loss Awareness month. One in four women will experience such a loss. I won’t call myself an advocate. I can’t fit into that world. I’ll also leave the gentle posts to others that are better equipped to handle it. For many, a dark abyss forms, both in heart and mind, and you must contemplate the decision to let it consume you. And even if you fight it, that darkness still gets its piece and leaves an emptiness. All the while, as you face this struggle, majority of the world will be apathetical. I am not delusional enough to think that people who don’t know me would have any feelings about me. However, I, like plenty of loss moms, do know the sting of being dismissed by the people around you. I could be polite and say it’s because they don’t understand. Well, I call bullshit on that. We have all listened to the troubles and tragedies of others that we can’t relate to. Often we just want validation that our pain is real and is okay to feel. I fathom that the awkwardness of the conversation makes people hesitate, but I don’t find this the biggest issue. After initial sympathies are offered(if any at all), very rarely is there any follow-up. Why does this irritate me? Because I am inundated with constant melodramatic wailing about the importance of mental well-being and how people should support everyone. This is puffery in the sense that we have that kind of capacity. It is also dubious since I rarely see any action that accompanies all the Facebook and Twitter posts that boast about love.

One moment a women is being offered the promise of happiness. In the next, she essentially experiences a mini labor, her insides twisting and contracting,. That longingness she wished for has been expelled. She is left hollowed out. I do mean this both literally and figuratively. And too often she sits reeling from the catastrophe and the hormonal upheaval alone. Why is it now no one can submit a shoulder to cry on or bring food? Whether, these babies only lived in the womb or had the briefest of moments in their parents’ arms, they were our children and they were loved.

I know I’m rambling a bit. However, how you been in a room full of family members and not one comes up to you and express any kind of sympathy? I have. And it would kind of sucks, but I long ago came to accept that I’m not someone who people bother about. My mental and emotional state is dependent mostly on myself. This is just me, however, plenty of women need to connect with family and friends.

Each women experiences their loss differently. Each will tell (or not) their stories in their own way. Each will, hopefully, find a path to healing in their own time. But many would like to be remembered after life has seemingly returned to normal. Some need more support. Others would just like someone to ask: “How are you doing?” The acknowledgment that their child existed can do wonders. There’s a burden of feeling like you are the only one who remembers your baby. The arbitrary way your grief is treated isolates you.

Sentiments have a place. Pretty words might work for some. Actions. Making an effort. This is what I see as meaningful.

If we want to work on being more compassionate, then we should start by being aware of the people closest to us. I believe a more local focus helps us build a bigger picture. Otherwise, it’s just posturing.

Nope, not an advocate. I’m probably the jerk you think I am. Have a string of displeased people in my wake that agree. I’m just tired of people’s idea of “helping” is to do a fun run. Or whatever viral fad is making the rounds. We want the appearance of being a good person because we neglect to actually BE one. Not saying we’re inherently evil, but not as humanitarian as the facade we don.


Sorry, if this post became disjointed. When I witness the opposite of what I’m being forced-fed, well, my eyes are still rolling. And even though I don’t fit in with the specialty groups I’m a member of, I still want to see a better support bridge in place.

Monday, October 2, 2017

The PGS results

Technically, I received the call on Friday. We went on a quick trip and I didn’t feel like posting. Being in a hotel room feels like escaping reality. Your existence centers around that little room and it’s easy not to care about what is happening elsewhere. Sooooooo….we’re back home now.

Out of the eight embryos tested; five were cleared as “normal.” And—spoil alert—they are all girls. We now have five tiny female embabies waiting for us. Still, nothing is guaranteed. The chances of success do rise, but no certainties. We will be transferring just one embryo at a time. There are several reasons for this. First, I have previous have suffered from an incompetent cervix. So the smaller the gamble on multiples, the better. Second, due to the blood clots I had, again one baby is better. I will be on blood thinners my entire pregnancy. Third, it seems to be recommended for a normal, healthy embryo. This will give us five potential attempts.

It looks like the end of this month or the beginning of November we should be able to transfer. What of the other three? Two were male, one undetermined sex. One had trisomy (three copies of a chromosome) and two had monosomy (one copy of a chromosome).

I find it all surreal. Basically, we started with 20 maybe babies. Now we are down to five. I am very grateful to have them. It’s just astounding to see how fast they can dwindle away.

Can I go hide in a hotel again?


Friday, September 22, 2017

Day 7 Embryo Update

Well, we officially have 8 frozen embryos. The embryologist confirmed that each one has been biopsied and safely tucked away. It can take 10-14 days for the testing to be completed. The testing we are doing is called preimplantation genetic screening (PGS). PGS will screen the embryos for chromosomal abnormalities. Sooooo…..it’s mean a return to the waiting game. After dropping from fifteen to eight embryos, I worry how many will be normal. First, you get excited because of the high number. Then, you lose half of them and it feels like the pendulum is swinging the other way. Oh, they tell you not to worry about things you can’t control. I wonder, though, if the worry is not for the situation, but for how we will handle it when we come out the other side.


Our hope is to transfer in October. All depending on my body cooperating and the biopsy results.

Monday, September 18, 2017

Day 3 -- Embryo Update

An interesting thing happened on the way to forum…..or on today’s phone report. First, the nurse told me was had 15 embryos. Ummm, 15? That is an increase from the 13 we had on Saturday. Apparently, two additional eggs matured and were able to be fertilized. So we got two more! Eleven of the fifteen are considered “good.” While the other four are “fair” but still had a healthy cell count. Now, I get to sit and fret for the next four days until the follow-up report. Here’s to wishfully thinking. 

Saturday, September 16, 2017

Day 1 – Fertilization Report

Received the call this morning. Out of the 20 eggs retrieved, 14 were mature. Of those fourteen, 13 fertilized normally. Now because we are having the embryos tested, the clinic performed a procedure called ICSI. Which stands for intracytoplasmic sperm injection. It just means the embryologist directly injected the sperm into the egg. Overall, so far, so good at this point. Next report will be on Monday. Grow, little embryos, grow.

I still feel blah. Just can’t get situated enough to sleep well. But, I am getting better. 

Friday, September 15, 2017

The Harvesting ...Updated

As we drive to the clinic my stomach has began to do little summersaults. The anticipation causes my breath to catch. I'm scared about how things will turn out. I responded well, but will my eggs be a good quality? I have my lucky socks on though...


Now that I’m more coherent as the anesthesia wears off, I shall break down today’s events. After checking in, they took J2 back for his – ahem – sample. Then a nurse came and grabbed me, went over a few things for ER post procedure, and took me back to the prep area. Prep area – ice box. Same difference. I’m sure there’s a reason for it to be cold, but when you’re stripping down it doesn’t seem to make sense. Also, I realize how much I missed J2 because he wasn’t there to tie my gown up. So there I sat on the gurney fashionista style in a thin gown, head cap, and booties (but also got to keep my socks on) waiting to be taken into the OR. My doctor stopped by to brief me about what was going to happen. A few minutes later, a couple of nurses escorted me into the OR. I met the anesthetist, who was very nice. And I was introduced to the lovely embryologist who would be taking care of my little pre-babies and turning them into embryos. And then…….I was out.

Time traveling nearly 30 minutes into the future, I awoke were I started. This time I had J2 at my side. It’s always a relief to see him there. He calms me down. The nurse checked on me and then Dr. G came by. They extracted (as J2 calls it) 20 eggs. That’s a good amount.

Once I was more alert and fairly steady, we left for home. Remember how I said I was uncomfortable earlier? I taken that back. My abdomen feels extremely bloated, but there’s also some pain. I can’t sit up without it feeling like I’m squashing my insides. Moving around is awkward because, you know, all that work your midsection is involved in. Once I arrived home I planted myself on the couch and have been sleeping on and off. Furthermore, these are my plans for the rest of the weekend.

And now…...more waiting.



Tomorrow, we will be given the fertilization report. How many were mature and of those how many could be fertilized. I’m nervous. I really hope we got some good eggs that will then make good embryos. I don’t know if I could bear to fail again. Some semblance of success to generate a peace that this was a journey worth weathering. The discomfort and tiredness increase my apprehensiveness.

I will resume blood thinners and continue those for about a fortnight. Regarding what actually took place today and the how fragile it all is, everything was over so quick.


Thursday, September 14, 2017

IVF Update #5

Stim day 10
Just for reference: my estradiol levels went from 2522.0 pg/ml on Sept 13 to 4189 pg/ml on Sept 14. No shots tonight. My belly is delighted. I would do a jaunty dance, but I can barely move. So I’ll gesture my hands in excitement.




To-morrow, to-morrow. Egg retrieval Is tomorrow. Is that not how the song goes? Well it does now. Bright and freaking early. 8 am. In order to avoid traffic, we have decided to stay in a hotel. Oh, and so I don’t have to wake up extra early. You might gather that I detest mornings.





You would be correct. J2 on the other hand:



How annoying is that? Ha ha! He does get a ton of shit done though. As long as I can sleep, no one gets hurt.


Away we go. If you like me; keep your fingers crossed for us. 


Wednesday, September 13, 2017

IVF Update #4…..Maximum Overload

See that? It’s the finish line to this part of our journey. About 40 little pre-babies have been growing for about a week. Today, my doctor said they are ready. So tonight we trigger with Lupron. I’ve never been so thrilled to be getting just on injection.



Lupron uses LH instead of HCG to trigger ovulation. I’m using this type to help reduce the chance of OHSS. Ovarian Hyperstimulation Syndrome is where the ovaries can swell. If it becomes severe, I could end up in the hospital. Dr. G is trying to prevent this. Drinks with electrolytes and food with protein and salt have been known to help decrease the odds.


Tomorrow, I go in for more blood work to check to make sure the Lupron is doing its job. Which makes Friday -- Egg Retrieval Day. It’s here…...almost. Now to prepare for the days following ER.

Tuesday, September 12, 2017

IVF Update #3



Welcome to stim day 8. I feel like this:

Just roll me around. Literally.




A beached whale would also be an appropriate metaphor. The copious number of eggs have caused my ovaries to touch. My doctor had difficulty seeing where one ended and the other began. No worries….it’s not dangerous. Sitting is a chore. Stretchy waistbands only. Or dresses. Good news is that I only have a couple more days. The official countdown hasn’t begun, yet. That won’t happen until I get the trigger shot. Here’s what tonight round of meds looked like:


                                 

Side note: See what I have circled in red? I cannot tell you how much I love that little thing. It’s called a Q-Cap. Why is it amazing? Let me bring you into the know. Normally, when you are mixing a solution and a powder medication you use a long needle to draw the liquid from one vial and inject into the powder vial. Then, you withdraw the mixture. Finally, you switch to a smaller needle and complete the injection. The Q-Cap eliminates the first two steps. This way you’re not trying to balance the vial while holding the needle and withdrawing the meds. That cute little cap fits over the top and has a tiny needle to puncture the rubber top. Just turn it upside down and pull down the plunger. Voila! Now, the original way is not as formidable as I make it sound. But, I just got excited that something in this process was made easier. Please, just let me have this. Considering my stomach looks like this right now….


Anyway, back to the main update. I still seem to have a rough estimate of 13 follicles on the left and 20ish on the right. Of these 19 are measuring between 13mm – 22mm. My estradiol came back as 2556.1 pg/ml. Progressing nicely. Even my doctor is kind of excited.

So tomorrow I go back for what might be my final scan. It’s getting close. Wow. I still feel like I am I daze that all this is happening. I think by having the days broken up between scans and blood work make it so it doesn’t feel so overwhelming. Well, that’s from my perspective.



Sunday, September 10, 2017

IVF Update #2

Stim day 6, time for more blood work and a follicle check. Estradiol came back as 1478.1 pg/ml. Almost tripling in two days. Next up, the ultrasound. Now, when I mention ultrasounds I am speaking of the transvaginal kind. You’re exposed and uncomfortable. Honestly, at this point, after everything that has occurred, I possess no modicum of embarrassment in stripping waist down and flinging my feet into stirrups. In general, I am a modest person, but no longer in a medical environment. Log that under interesting tidbit of the day.

What did the scan show today? I have amassed roughly 13 follicles in my left ovary and 20 follicles in my right ovary. Of those, from the few my doctor measured, 16 are between 12mm – 16mm in diameter. Not quite mature, but getting very close. Because they don’t want me to ovulate on my own I was given a dose of Cetrotide in office. I will also start this tonight and use it until I trigger. My doctor also decided to drop the Gonal-F injections and just maintain the Menopur at 150 iu.

Next appointment will be on Tuesday. It is possible egg retrieval will happen before Saturday. Which was the original tentative date. This whole process is flying by…..like I can’t catch a breath. We are excited that my body is responding well.


Symptoms: abdomen is bloated (because of the follicles), bruising from the blood thinner, still tired, breast tenderness, and uncomfortableness due to the bloating.